Grateful Little Victories

When every day is a struggle with illness, you learn to be grateful for the little victories.

Wednesday, March 20, 2013

3/19 - What is this feeling?

Realizing that I feel better than I have in 2-3 months.

Posted by Shayla Maas at 5:34 PM No comments:
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3/18 - Cold day and soup

Made a big pot of veggie soup - an excellent use of a frigid day.

Posted by Shayla Maas at 5:25 PM No comments:
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Sunday, March 17, 2013

It was a just a poem before this

Wrote a verse & chorus for songwriting class - finally happy with something as a song!

Posted by Shayla Maas at 11:02 PM No comments:
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I was supposed to be writing a song tonight

Got my hands on a new filk album that I'd been eagerly waiting on. (Julia Ecklar - Horsetamer)

Posted by Shayla Maas at 3:31 AM No comments:
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Friday, March 15, 2013

Beware the Ides of March

Made it through the Ides of March without being stabbed 23 times by a friend! Or, more seriously, realized why I've never liked any songs I wrote - this songwriting class is awesome!

Posted by Shayla Maas at 11:54 PM No comments:
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Steps toward acceptance

(Above, Pi to 40 decimal places. Below, "Happy Pi Day!") Decided that it is OK if I fall behind on this blog at times, as long as I'm still noting my victories.

Posted by Shayla Maas at 2:39 AM No comments:
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Digest post - March 10-13

I figured out a bathing method that neither required standing in the shower nor sitting down in the tub.

Successfully left not only my bed but also the house for the first time in days.

Sat up at the computer for a couple hours, even playing some Aion. 

FINALLY did the stock-the-cupboards shopping trip I've been delaying for weeks.

Posted by Shayla Maas at 2:29 AM No comments:
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Digest post - March 6-9

Had cake & long conversations with the little sister.

Fell in love with another Coursera class - this one on songwriting.

I did something VERY unwise and while I know I'll pay for it, it still felt good.

I couldn't get out of bed, but having pillows, blankets, and a laptop meant I could finally watch X-Men: First Class.

Posted by Shayla Maas at 2:13 AM No comments:
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Digest post - March 1-5

Speaking up, even if through tears, when my pain control was entirely inadequate.

Staying in bed all day, because horizontal meant less pain than vertical.

Being able to transition to a lesser pain medication for at least part of the day.

Ordered beautiful flowers for the wedding, and a supremely geeky cake. :D (FFXI-themed!)

Took part in a chat hangout about changing hiring practices to be more equitable to various marginalized groups.

Posted by Shayla Maas at 1:38 AM No comments:
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Digest post - end of February

Figuring out a work-around with another bit of hardware when a piece of your tech breaks beyond repair.

Choosing to do what I needed to do, rather than push myself to do what I wanted.

Deciding to replace broken bits instead of getting an unneeded toy.

Writing a Wheel of Time fanfic request that I've been promising for months.

Posted by Shayla Maas at 12:29 AM No comments:
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Shayla Maas
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Relevant blogs - places you might find related topics

  • A Southern Celiac
  • Benefits Scrounging Scum
  • ButYouDon'tLookSick.com
  • Deb's Fibromyalgia Blog
  • Ehlers-Danlos Syndrome - Deal With It
  • FIBROMYALGIA
  • Guidance, Healing, and Love by Sydney
  • Life and Fibromyalgia
  • Little Miss Dinky's E.D.S. Diary
  • Sally Rouge
  • The Bloggess
  • The Tensile Times
  • The Zebra Diary

The Usual Suspects - some of my standard reading list

  • A Day in the (Fat) Life
  • Bardic Blog
  • From Rebecca's Window
  • Kottke.org
  • Leah Raeder
  • Life on the Fat Farm
  • Live.Like.A.Rockstar
  • Noël Lynne Figart
  • Whatever
  • WilWheaton.net
  • Zen Habits

Time for a break - comics I read regularly

  • Ctrl+Alt+Del
  • Dork Tower
  • El Goonish Shive
  • Gods Playing Poker
  • Joy of Tech
  • Misfile
  • VG Cats
  • XKCD
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