Grateful Little Victories

When every day is a struggle with illness, you learn to be grateful for the little victories.

Friday, January 31, 2014

It's just more comfortable this way

I stripped & remade the bed so I can ride out this normal-people sick + EDS flare as comfortably as I may.

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Thursday, January 30, 2014

You can't technically file until 1/31

I completed all the tax forms for the household, even if they can't yet be filed.

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Wednesday, January 29, 2014

New meds to try and increased amounts of some others

I got appropriate tests and reasonable treatment options from my awesome Aussie doctor.

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Monday, January 27, 2014

My doctor really does try to learn

I collected up some EDNF newsletters to give to my PCP.

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I felt like I was moving in slow motion

I got my kitchen all cleaned up, however slowly I had to move.

Posted by Unknown at 6:59 AM No comments:
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Sunday, January 26, 2014

My cat has some bad teeth that are bothering her

I finally figured out what my cat was trying to tell me about her food.

Posted by Unknown at 5:56 AM No comments:
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Saturday, January 25, 2014

I love my social family and my endgame family

I reunited with the other half of my Final Fantasy family.

Posted by Unknown at 6:30 AM No comments:
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Friday, January 24, 2014

Hopefully I'll sleep earlier and wake on time & rested

I made sure to get up early enough to make tomorrow's doctor appointment less stressful.

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Thursday, January 23, 2014

I think we were each having a different argument

I did not lose my cool when talking to a friend about one of my hot button issues.

Posted by Unknown at 7:36 AM No comments:
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Wednesday, January 22, 2014

They introduced specialization tracks

I signed up for several Coursera classes - but did not let myself go overboard!

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Tuesday, January 21, 2014

Normally it snaps right back into place

When I needed help with something, I asked for help instead of pushing too hard.

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Monday, January 20, 2014

Not everything is forever

I gave myself permission to let go of some things in my life that no longer served me.

Posted by Unknown at 7:24 AM No comments:
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Sunday, January 19, 2014

A few exasperated sighs but no actual violence

I made it through a busy shopping trip without wanting to hit anyone with my cane.

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Saturday, January 18, 2014

Along with hanging with friends in FFXIV

Thai food & birthday cake for a slightly belated celebration.

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Friday, January 17, 2014

And today marks 33 years

I received many awesome birthday wishes - some that were quite unexpected.

Posted by Unknown at 6:08 AM No comments:
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Thursday, January 16, 2014

Catching up with a binge

I spent a quiet night with tea, chocolate, Sherlock, and Agents of SHIELD.

Posted by Unknown at 2:49 AM No comments:
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Wednesday, January 15, 2014

Social comfort zone

I agreed to try new activities with a friend of a friend in FFXIV & it Did Not Suck.

Posted by Unknown at 5:29 AM No comments:
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Tuesday, January 14, 2014

I dislike internet drama

When someone was being rude to my fandom community, I stood up and said something.

Posted by Unknown at 4:45 AM No comments:
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Monday, January 13, 2014

I even recruited some friends to help out

When people failed to talk me out of a Very Unwise Idea, but encouraged me instead, I made it a Super Secret Project.

Posted by Unknown at 6:23 AM No comments:
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Sunday, January 12, 2014

And it was even a birthday in the group today

After work schedules, travel, and illness kept everyone busy for weeks, I got to run stuff in FFXIV with friends.

Posted by Unknown at 5:06 AM No comments:
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Saturday, January 11, 2014

Steel cut oats and from scratch cocoa

Starting my day with hot cocoa and a bowl of Irish oatmeal.

Posted by Unknown at 4:16 AM No comments:
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Friday, January 10, 2014

Unwieldy to wear all together, but I don't NEED them all at once

I got the rest of my custom thermoplastic finger splints made.

Posted by Unknown at 5:44 AM No comments:
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Thursday, January 9, 2014

I refused to let anything stress me out today

I knew I needed to recover from the hell of yesterday, so I kept everything low-key today.

Posted by Unknown at 3:11 AM No comments:
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Wednesday, January 8, 2014

Exhausted, hungry, cold, stressed, and flaring

When my day went to utter shit, I managed to hold back the hysterics until I was home.

Posted by Unknown at 5:28 AM No comments:
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Tuesday, January 7, 2014

I'll still need braces, but I can type without pain!

Got my new mechanical keyboard & got it set up! I can type WITHOUT dislocating!

Posted by Unknown at 5:35 AM No comments:
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Monday, January 6, 2014

I can feel justified in being a bump on a log now

Reorganized the kitchen, dining room, living room, and bathroom and cleaned All the Things.

Posted by Unknown at 7:00 AM No comments:
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Sunday, January 5, 2014

My husband will be making me a mod to fix this

I did NOT have a full blown panic attack when attacked by some very realistic spiders in Skyrim.

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Saturday, January 4, 2014

Grump grump grump

Playing games with my grumpy husband and the both of us being less grumpy for it.

Posted by Unknown at 6:58 AM No comments:
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Friday, January 3, 2014

More fun than it should be

I had more fun than is probably appropriate with building a budget using YNAB.

Posted by Unknown at 6:25 AM No comments:
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Wednesday, January 1, 2014

Happy New Year!

Hello! Are you still reading here? If you are, thank you! I faded away a couple months ago, and spent the end of 2013 just trying to get by - without the spoons to really look for even the little victories.

Between the death of my cat, Apollo, and the worsening of my Ehlers-Danlos Syndrome, most of my attention has been focused inward. Apollo had been a companion and rock for me for 12 years, so losing him was especially hard. I still have his sister, Diana, and that helps.

With the EDS, I have gotten new braces for my neck, wrists, and soon all my fingers. I'm getting a new keyboard (mechanical, with Cherry MX Brown switches) that should help abate the finger dislocations. Basically, I should be able to type & write easier soon.

Overall, 2013 didn't suck as much for me as for some of my friends, but some of it sucked pretty bad, nonetheless. But now its is 2014. I'm all set to have an easier time with my existing issues, so I'll handle new ones better.

So GLV got a mini makeover, and I feel like I can start looking for the bright spots that make up my little victories again. Won't you join me for a year of petting cats & blogging victories? -Shayla

Posted by Unknown at 11:59 PM No comments:
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Blog Archive

  • ►  2015 (4)
    • ►  February (1)
    • ►  January (3)
  • ▼  2014 (131)
    • ►  October (7)
    • ►  September (2)
    • ►  August (3)
    • ►  July (2)
    • ►  June (1)
    • ►  May (18)
    • ►  April (23)
    • ►  March (20)
    • ►  February (25)
    • ▼  January (30)
      • It's just more comfortable this way
      • You can't technically file until 1/31
      • New meds to try and increased amounts of some others
      • My doctor really does try to learn
      • I felt like I was moving in slow motion
      • My cat has some bad teeth that are bothering her
      • I love my social family and my endgame family
      • Hopefully I'll sleep earlier and wake on time & re...
      • I think we were each having a different argument
      • They introduced specialization tracks
      • Normally it snaps right back into place
      • Not everything is forever
      • A few exasperated sighs but no actual violence
      • Along with hanging with friends in FFXIV
      • And today marks 33 years
      • Catching up with a binge
      • Social comfort zone
      • I dislike internet drama
      • I even recruited some friends to help out
      • And it was even a birthday in the group today
      • Steel cut oats and from scratch cocoa
      • Unwieldy to wear all together, but I don't NEED th...
      • I refused to let anything stress me out today
      • Exhausted, hungry, cold, stressed, and flaring
      • I'll still need braces, but I can type without pain!
      • I can feel justified in being a bump on a log now
      • My husband will be making me a mod to fix this
      • Grump grump grump
      • More fun than it should be
      • Happy New Year!
  • ►  2013 (180)
    • ►  October (3)
    • ►  September (9)
    • ►  August (23)
    • ►  July (28)
    • ►  June (20)
    • ►  May (13)
    • ►  April (20)
    • ►  March (22)
    • ►  February (24)
    • ►  January (18)
  • ►  2012 (207)
    • ►  December (30)
    • ►  November (31)
    • ►  October (31)
    • ►  September (30)
    • ►  August (30)
    • ►  July (32)
    • ►  June (23)

Relevant blogs - places you might find related topics

  • A Southern Celiac
  • Benefits Scrounging Scum
  • ButYouDon'tLookSick.com
  • Deb's Fibromyalgia Blog
  • Ehlers-Danlos Syndrome - Deal With It
  • FIBROMYALGIA
  • Guidance, Healing, and Love by Sydney
  • Life and Fibromyalgia
  • Little Miss Dinky's E.D.S. Diary
  • Sally Rouge
  • The Bloggess
  • The Tensile Times
  • The Zebra Diary

The Usual Suspects - some of my standard reading list

  • A Day in the (Fat) Life
  • Bardic Blog
  • From Rebecca's Window
  • Kottke.org
  • Leah Raeder
  • Life on the Fat Farm
  • Live.Like.A.Rockstar
  • Noël Lynne Figart
  • Whatever
  • WilWheaton.net
  • Zen Habits

Time for a break - comics I read regularly

  • Ctrl+Alt+Del
  • Dork Tower
  • El Goonish Shive
  • Gods Playing Poker
  • Joy of Tech
  • Misfile
  • VG Cats
  • XKCD
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