Grateful Little Victories

When every day is a struggle with illness, you learn to be grateful for the little victories.

Sunday, October 12, 2014

I regretted yesterday's missed poetry opportunity

I am taking a lesson from the autumn trees and bidding farewell to my own dead leaves.

Posted by Unknown at 10:26 PM No comments:
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Saturday, October 11, 2014

Packing for a move is a great time to do this

I am taking a lesson from the autumn trees and letting go of the dead things that no longer serve me.

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Friday, October 10, 2014

The first two on either hand are accent nails

I painted my nails in purple and orange for the season.

Posted by Unknown at 11:55 PM No comments:
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Sunday, October 5, 2014

A variation on my mother's recipe for potato soup

Making that first big pot of soup as the temperature starts to fall.

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Apple jelly looked tasty and simple enough to start

I successfully ventured into the realm of canning for the first time.

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Saturday, October 4, 2014

I even got my blood work done before the PFTs

I finished my PFTs, ate lunch, and managed a shower before needing a nap.

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Wednesday, October 1, 2014

It wasn't enough rest, but it's better than my average!

I tried some new recipes for dinner, and I remembered to sit down and rest at least occasionally.

Posted by Unknown at 11:25 PM No comments:
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Sunday, September 14, 2014

The 'all' part is more impressive than you might think

I took all of my meds, every day, all week, even though I was distracted by company.

Posted by Unknown at 10:12 PM No comments:
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Saturday, September 6, 2014

Green green green green green~

After many years of wanting to dye my hair green, I did! I am a proto-Sailor Pluto!

Posted by Unknown at 9:41 PM No comments:
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Sunday, August 17, 2014

I have another Thing to do tomorrow, too

I went out and did A Thing for the second day in a row.

Posted by Unknown at 11:59 PM No comments:
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Saturday, August 16, 2014

It's even GREEN

Had an Ikea day, and scored a new desk chair for 30% off.

Posted by Unknown at 11:57 PM No comments:
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Tuesday, August 5, 2014

Having EDS means sometimes working past the dislocations

Despite waking up and flopping about like a fish to put my left shoulder back in place, I got more done around the house than I have in a week.

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Friday, July 18, 2014

I think I want to look up how to find the factory set master code for the keyless locks...

It was not raining and was a perfect temperature while I sat outside to wait on AAA to arrive.

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Thursday, July 17, 2014

Blasting some Seanan McGuire music from my kitchen

I opened the windows and danced around to music while I cleaned - then I stopped before I pushed too far.

Posted by Unknown at 11:35 PM No comments:
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Thursday, June 5, 2014

I normally only do this for conventions

I got all dolled up and went out to a social event IN MY HOME AREA.

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Saturday, May 31, 2014

Kitty love is best

I spent an hour just holding and cuddling my cat, Diana.

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Thursday, May 29, 2014

It's rare that I am inspired to bake but without a specific end goal

I wanted to bake something, so I found a recipe that sounded good & for which I had most ingredients. It is lovely.

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Sunday, May 25, 2014

This new bra is super cute but also $$$

I got properly, professionally fitted for a new bra.

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Saturday, May 24, 2014

Amazon Local / Living Social deals are amazing things

I had a massage with a therapist who listened to me and still wasn't afraid of my medical history.

Posted by Unknown at 5:03 AM No comments:
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Friday, May 23, 2014

Not that I don't also engage in kitchen witchery

I decided that, more than a kitchen witch, I am a general hearth witch.

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Wednesday, May 21, 2014

Sometimes it is not about fixing

I soothed fears and I listened.

Posted by Unknown at 10:37 PM No comments:
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Tuesday, May 20, 2014

An iron handshake and a slap on the shoulder aren't good bedside manners

When a doctor appointment ramped up my pain level, I decided to make it "a cuddle on the couch with blankets and movies" day.

Posted by Unknown at 4:13 AM No comments:
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Sunday, May 18, 2014

They say, 'speak your mind, even if your voice shakes'

I stood up for myself and my needs when an accommodation was taken away from me.

Posted by Unknown at 2:01 AM No comments:
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Friday, May 16, 2014

Cool and rainy and very comfortable

I spent a productive day listening to the rain and sorting a giant pile of insurance-related mail.

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Wednesday, May 14, 2014

Apparently I sometimes floss too vigorously

I got my broken tooth fixed with a minimum of pain and fuss.

Posted by Unknown at 11:27 PM No comments:
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It's a discussion that will take months, but it's started now

I broached a potentially life-altering discussion with a dear friend and got a cautiously positive response.

Posted by Unknown at 1:45 AM No comments:
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Monday, May 12, 2014

This splint is awesome

I got my free EDS ring splint and discovered just HOW MUCH I need the extra support.

Posted by Unknown at 11:24 PM No comments:
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Sunday, May 11, 2014

I've had this box of memories for close to 20 years

I let my ruthlessly practical side (as opposed to the Pack Rat) work on decluttering some old trinkets and memories.

Posted by Unknown at 11:20 PM No comments:
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Tuesday, May 6, 2014

Seanan McGuire is a wonderful human being

Text says: I got some touching words and real advice from someone I respect greatly.

Posted by Unknown at 3:34 AM No comments:
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Monday, May 5, 2014

Love and cake

I celebrated my 1st anniversary.

Posted by Unknown at 3:49 AM No comments:
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Sunday, May 4, 2014

You can't please everyone, but you can listen to them

When my FC had a meeting to discuss issues and ideas for the future, I both participated and felt like I contributed.

Posted by Unknown at 4:37 AM No comments:
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Friday, May 2, 2014

Time with yourself and time with those who stir your body and spirit

I spent Beltane mostly alone, enjoying self-care and solitude, before splitting my evening between my husband and my new romantic interest.

Posted by Unknown at 3:55 AM No comments:
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Thursday, May 1, 2014

I opted for a lesser known fairytale for Spellbound & Spindles

I finished a complex poem - a fairytale with a few twists!

Posted by Unknown at 3:38 AM No comments:
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Wednesday, April 30, 2014

Just a few little sprouts in each pot

My herbs are sprouting in my kitchen window.

Posted by Unknown at 3:43 AM No comments:
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Tuesday, April 29, 2014

Just a bit of a viral sinus crud now

Got the all clear from my doctor - I'm all recovered from my attack last month & my asthma is doing well.

Posted by Unknown at 4:42 AM No comments:
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Monday, April 28, 2014

I love my FC chat, they're just very... chatty

I learned how to turn of G+ Hangouts notifications, and so got 9 hours of uninterrupted sleep.

Posted by Unknown at 4:02 AM No comments:
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Sunday, April 27, 2014

As one friend told me, "It's important to have fun with your friends"

I did something scary and anxiety-provoking, but that I think will make me happier overall.

Posted by Unknown at 5:25 AM No comments:
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Saturday, April 26, 2014

Those first, tentative, 'what IS our relationship?'-type discussions are tough

With a shaking voice and trembling hands, I spoke louder than the brain weasels, if only for a moment.

Posted by Unknown at 5:21 AM No comments:
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Friday, April 25, 2014

Note that 'completely' is the operative word here

Despite having a bad brain day, I fought my natural inclination to completely clam up & hide.

Posted by Unknown at 4:45 AM No comments:
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Wednesday, April 23, 2014

Bekah Kelso and SJ Tucker were on tap for tonight

I spent some focused time practicing my singing.

Posted by Unknown at 11:45 PM No comments:
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Tuesday, April 22, 2014

Between phone calls, eating when appropriate, and a shower, I'm wiped

I made all the appropriate phone calls to follow up after yesterday's misadventures.

Posted by Unknown at 9:26 PM No comments:
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With Ehlers-Danlos, even minor car accidents can hurt

When a minor car accident knocked off half my spoons, I carefully rationed the rest to finish my day.

Posted by Unknown at 4:34 AM No comments:
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Sunday, April 20, 2014

SJ Tucker, flowers, and herbs

I sang loud and got my hands dirty as I planted many things.

Posted by Unknown at 8:38 PM No comments:
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That fine line between 'enough' and 'too much'

I deep-cleaned the kitchen and bathroom, then stopped.

Posted by Unknown at 3:54 AM No comments:
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Saturday, April 19, 2014

If you enjoy the MCU movies, go see this one

I had a date with my husband to see Winter Soldier, and it was AWESOME.

Posted by Unknown at 3:34 AM No comments:
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Friday, April 18, 2014

My first try of the day

I BEAT TITAN HM. :D

Posted by Unknown at 3:17 AM No comments:
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Thursday, April 17, 2014

This time it was the neck brace

Made it through shopping and then remembered to put on a brace to let my body rest.

Posted by Unknown at 6:13 AM No comments:
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Wednesday, April 16, 2014

Folding laundry and paying bills and washing dishes, oh my

I caught up on a pile of maintenance chores, even while VERY distracted.

Posted by Unknown at 3:26 AM No comments:
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Tuesday, April 15, 2014

Distance makes a face-to-face date infeasible

I had a virtual first date - and it was fantastic.

Posted by Unknown at 3:13 AM No comments:
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Monday, April 14, 2014

It was 80+ F today, but will be 46 F by Tuesday

On an unseasonably warm day for this Spring, I opened up the windows & aired out the house.

Posted by Unknown at 1:07 AM No comments:
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About Me

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Blog Archive

  • ►  2015 (4)
    • ►  February (1)
    • ►  January (3)
  • ▼  2014 (131)
    • ▼  October (7)
      • I regretted yesterday's missed poetry opportunity
      • Packing for a move is a great time to do this
      • The first two on either hand are accent nails
      • A variation on my mother's recipe for potato soup
      • Apple jelly looked tasty and simple enough to start
      • I even got my blood work done before the PFTs
      • It wasn't enough rest, but it's better than my ave...
    • ►  September (2)
      • The 'all' part is more impressive than you might t...
      • Green green green green green~
    • ►  August (3)
      • I have another Thing to do tomorrow, too
      • It's even GREEN
      • Having EDS means sometimes working past the disloc...
    • ►  July (2)
      • I think I want to look up how to find the factory ...
      • Blasting some Seanan McGuire music from my kitchen
    • ►  June (1)
      • I normally only do this for conventions
    • ►  May (18)
      • Kitty love is best
      • It's rare that I am inspired to bake but without a...
      • This new bra is super cute but also $$$
      • Amazon Local / Living Social deals are amazing things
      • Not that I don't also engage in kitchen witchery
      • Sometimes it is not about fixing
      • An iron handshake and a slap on the shoulder aren'...
      • They say, 'speak your mind, even if your voice sha...
      • Cool and rainy and very comfortable
      • Apparently I sometimes floss too vigorously
      • It's a discussion that will take months, but it's ...
      • This splint is awesome
      • I've had this box of memories for close to 20 years
      • Seanan McGuire is a wonderful human being
      • Love and cake
      • You can't please everyone, but you can listen to them
      • Time with yourself and time with those who stir yo...
      • I opted for a lesser known fairytale for Spellboun...
    • ►  April (23)
      • Just a few little sprouts in each pot
      • Just a bit of a viral sinus crud now
      • I love my FC chat, they're just very... chatty
      • As one friend told me, "It's important to have fun...
      • Those first, tentative, 'what IS our relationship?...
      • Note that 'completely' is the operative word here
      • Bekah Kelso and SJ Tucker were on tap for tonight
      • Between phone calls, eating when appropriate, and ...
      • With Ehlers-Danlos, even minor car accidents can hurt
      • SJ Tucker, flowers, and herbs
      • That fine line between 'enough' and 'too much'
      • If you enjoy the MCU movies, go see this one
      • My first try of the day
      • This time it was the neck brace
      • Folding laundry and paying bills and washing dishe...
      • Distance makes a face-to-face date infeasible
      • It was 80+ F today, but will be 46 F by Tuesday
    • ►  March (20)
    • ►  February (25)
    • ►  January (30)
  • ►  2013 (180)
    • ►  October (3)
    • ►  September (9)
    • ►  August (23)
    • ►  July (28)
    • ►  June (20)
    • ►  May (13)
    • ►  April (20)
    • ►  March (22)
    • ►  February (24)
    • ►  January (18)
  • ►  2012 (207)
    • ►  December (30)
    • ►  November (31)
    • ►  October (31)
    • ►  September (30)
    • ►  August (30)
    • ►  July (32)
    • ►  June (23)

Relevant blogs - places you might find related topics

  • A Southern Celiac
  • Benefits Scrounging Scum
  • ButYouDon'tLookSick.com
  • Deb's Fibromyalgia Blog
  • Ehlers-Danlos Syndrome - Deal With It
  • FIBROMYALGIA
  • Guidance, Healing, and Love by Sydney
  • Life and Fibromyalgia
  • Little Miss Dinky's E.D.S. Diary
  • Sally Rouge
  • The Bloggess
  • The Tensile Times
  • The Zebra Diary

The Usual Suspects - some of my standard reading list

  • A Day in the (Fat) Life
  • Bardic Blog
  • From Rebecca's Window
  • Kottke.org
  • Leah Raeder
  • Life on the Fat Farm
  • Live.Like.A.Rockstar
  • Noël Lynne Figart
  • Whatever
  • WilWheaton.net
  • Zen Habits

Time for a break - comics I read regularly

  • Ctrl+Alt+Del
  • Dork Tower
  • El Goonish Shive
  • Gods Playing Poker
  • Joy of Tech
  • Misfile
  • VG Cats
  • XKCD
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