Grateful Little Victories

When every day is a struggle with illness, you learn to be grateful for the little victories.

Monday, December 31, 2012

Nothing earth-shattering

Having the difficult, but necessary, conversations.

Posted by Unknown at 7:31 AM No comments:
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Saturday, December 29, 2012

Especially Wheel of Time fandom

Feeling a PART of an online community in a way I haven't since my IRC (and later, FFXI) days. [heart you Tumblr]

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Okay, so the planning was secondary

Ventured out of the house, into the snow, and did preliminary wedding planning.

Posted by Unknown at 6:39 AM No comments:
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Wheel of Time fanfic

Wrote a bit of fanfiction for the first time in 14 years.

Posted by Unknown at 6:22 AM No comments:
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Thursday, December 27, 2012

I'll take it, it's something

I laughed spontaneously for the first time in days.

Posted by Unknown at 6:37 AM No comments:
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Tuesday, December 25, 2012

When the majority of my cards are about sleep?

Eventually managed another 3-4 hours sleep, after being awakened by the phone 2 hours after going to bed.

Posted by Unknown at 11:37 PM No comments:
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Monday, December 24, 2012

Haven't done a single one otherwise

Managed at least 1 holiday tradition (odd as it is) and made cajun 15 bean soup.

Posted by Unknown at 10:17 PM No comments:
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I started with 9 1/2 hours of sleep

I finally slept. When I woke, I wanted moe sleep. So I slept another 4 hours. Woke, then slept another 2 1/2. THEN I got  up.

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Sunday, December 23, 2012

Insomnia at least leads me to do household stuff

Getting several household things accomplished, even if my 1 stated goal wasn't.

Posted by Unknown at 1:19 AM No comments:
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Saturday, December 22, 2012

Actually made 2 pans by accident

Made an at least passable attempt at lasagna for the first time ever.

Posted by Unknown at 3:35 AM No comments:
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Thursday, December 20, 2012

My victory for the day is writing out my victory

Focusing long enough to write/post this card.

Posted by Unknown at 11:49 PM No comments:
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Wednesday, December 19, 2012

This is more writing that you'd think

Finished the 10 page disability self-assessment that has been on my desk for a week.

Posted by Unknown at 8:02 PM No comments:
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I can hold a pen today

Still needing my utensil adaptor to eat, but being able to hold a glass with 1 hand and grasp a pen for a time.

Posted by Unknown at 4:29 AM No comments:
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Wedding trip backlog, 12/17/12 - But it's only been 5 hours. Oh fine, be that way.

Acknowledging that I am in a full-blown flare and when, after just 5 hours, my body demanded I go back to bed, I listened.

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Wedding trip backlog, 12/16/12 - HI BED

Going to sleep in MY bed.

Posted by Unknown at 4:03 AM No comments:
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Wedding trip backlog, 12/15/12 - I even had an official title

Live-streaming my nephew's wedding for distant family/friends.

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Wedding trip backlog, 12/14/12 - I'm sure the car helped

Making a 9 hour drive and still having the energy to socialize with family after arriving.

Posted by Unknown at 3:48 AM No comments:
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Thursday, December 13, 2012

I am in sore need of it

Doing all necessary prep for trip early so I can get a good night's rest.

Posted by Unknown at 8:44 PM No comments:
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Wednesday, December 12, 2012

Too much to do, too little time

Preparing all the things for the next trip to Chicago (this weekend!).

Posted by Unknown at 11:42 PM No comments:
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Tuesday, December 11, 2012

Broccoli, Brussel's Sprouts, and breakfast sausage

I emptied the dishwasher, reloaded the dishwasher, and made myself the strangest fried rice ever.

Posted by Unknown at 11:51 PM No comments:
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Monday, December 10, 2012

I am a PMS monster

Realizing that PMS is making everything worse, and choosing to be gentle with myself because of it.

Posted by Unknown at 11:58 PM No comments:
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Sunday, December 9, 2012

Granted I can't play much on the laptop

Giving myself permission to work (and play) from my bed.

Posted by Unknown at 11:22 PM No comments:
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Okay, maybe I didn't "make" him do it

Staying awake WAY too late to make the fiance start book 9 of Wheel of Time. (Must. Have. More...)

Posted by Unknown at 12:06 AM No comments:
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Saturday, December 8, 2012

Braving cold and rain and fog

Grocery shopping at 10 at night to completely stock the freezer.

Posted by Unknown at 2:01 AM No comments:
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Thursday, December 6, 2012

Anime old school

Curling up in bed with a pile of old Sailor Moon episodes. (Across the top, the symbols for the Inner Senshi in their colors, along the bottom, "Supreme Thunder" in green.)

Posted by Unknown at 11:22 PM No comments:
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Wednesday, December 5, 2012

There are just some times...

Giving myself a little manicure/pedicure. (White base, red and green sparkles.)

Posted by Unknown at 11:59 PM No comments:
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Tuesday, December 4, 2012

Something is better than nothing

I got up AND I managed a shower, however sketchy, without falling down.

Posted by Unknown at 11:52 PM No comments:
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Monday, December 3, 2012

Alarm was set for 5pm

It took 2 1/2 hours, but I got out of bed.

Posted by Unknown at 11:51 PM No comments:
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Sunday, December 2, 2012

Oh hey, a Ustream app

Working out a way to broadcast my nephew's wedding for those who can't attend, if he agrees to let me.

Posted by Unknown at 11:42 PM No comments:
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Saturday, December 1, 2012

She hates me now, of course

Took steps to help my cat keep from licking her wound constantly (it involves a bright pink doggie vest.)

Posted by Unknown at 11:52 PM No comments:
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      • Nothing earth-shattering
      • Especially Wheel of Time fandom
      • Okay, so the planning was secondary
      • Wheel of Time fanfic
      • I'll take it, it's something
      • When the majority of my cards are about sleep?
      • Haven't done a single one otherwise
      • I started with 9 1/2 hours of sleep
      • Insomnia at least leads me to do household stuff
      • Actually made 2 pans by accident
      • My victory for the day is writing out my victory
      • This is more writing that you'd think
      • I can hold a pen today
      • Wedding trip backlog, 12/17/12 - But it's only bee...
      • Wedding trip backlog, 12/16/12 - HI BED
      • Wedding trip backlog, 12/15/12 - I even had an off...
      • Wedding trip backlog, 12/14/12 - I'm sure the car ...
      • I am in sore need of it
      • Too much to do, too little time
      • Broccoli, Brussel's Sprouts, and breakfast sausage
      • I am a PMS monster
      • Granted I can't play much on the laptop
      • Okay, maybe I didn't "make" him do it
      • Braving cold and rain and fog
      • Anime old school
      • There are just some times...
      • Something is better than nothing
      • Alarm was set for 5pm
      • Oh hey, a Ustream app
      • She hates me now, of course
    • ►  November (31)
    • ►  October (31)
    • ►  September (30)
    • ►  August (30)
    • ►  July (32)
    • ►  June (23)

Relevant blogs - places you might find related topics

  • A Southern Celiac
  • Benefits Scrounging Scum
  • ButYouDon'tLookSick.com
  • Deb's Fibromyalgia Blog
  • Ehlers-Danlos Syndrome - Deal With It
  • FIBROMYALGIA
  • Guidance, Healing, and Love by Sydney
  • Life and Fibromyalgia
  • Little Miss Dinky's E.D.S. Diary
  • Sally Rouge
  • The Bloggess
  • The Tensile Times
  • The Zebra Diary

The Usual Suspects - some of my standard reading list

  • A Day in the (Fat) Life
  • Bardic Blog
  • From Rebecca's Window
  • Kottke.org
  • Leah Raeder
  • Life on the Fat Farm
  • Live.Like.A.Rockstar
  • Noël Lynne Figart
  • Whatever
  • WilWheaton.net
  • Zen Habits

Time for a break - comics I read regularly

  • Ctrl+Alt+Del
  • Dork Tower
  • El Goonish Shive
  • Gods Playing Poker
  • Joy of Tech
  • Misfile
  • VG Cats
  • XKCD
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