Grateful Little Victories

When every day is a struggle with illness, you learn to be grateful for the little victories.

Tuesday, October 30, 2012

That was FAR more exciting than I hoped for

Surviving my first IVIG treatment with only one adverse reaction, and that swiftly tended to by awesome nurses.

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Monday, October 29, 2012

Hydroplaning all the way home

Made it home safe, despite a few spots of hydroplaning fun.

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Ah yes, multiple storm systems moving into the area

Getting up and moving around as necessary to lessen pain while at work. (Bonus: Coworkers who don't mind me pacing past their desks repeatedly.)

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Sunday, October 28, 2012

A coloring book the length of my arm

Getting a HUGE Brave coloring book (with stickers!), digging out my colored pencils, and NOT CARING that I'm not in kindergarten.

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Saturday, October 27, 2012

Doctors, doubling as tech support

Listening to one doctor act as tech support to another doctor. "Have you plugged it in? Is it turned on? Have you tried rebooting?"

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Friday, October 26, 2012

What next

Making plans for What Comes Next.

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Wednesday, October 24, 2012

It will not be easy, but it will work

That mix of anxiety and relief felt after turning in my  weeks' notice.

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And we have approval

Finding out that a treatment that might actually help was approved.

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Tuesday, October 23, 2012

I still have a job

I did NOT walk off the job. However much I WANTED to.

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Monday, October 22, 2012

Chilling out

Movies, ice cream, and generally CHILLING OUT.

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Sunday, October 21, 2012

Conversation and song

Long, rambling conversations with a friend, punctuated by breaks for folk music.

Posted by Unknown at 5:33 AM No comments:
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Saturday, October 20, 2012

Enough ‘beta viewers’ approved that I sent it to the boss

Finishing the first draft of my personal project at work.

Posted by Unknown at 3:05 AM No comments:
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Friday, October 19, 2012

Techie stuff (even if I couldn’t fix it)

Doing some (minor) tech support for the shift lead at work.

Posted by Unknown at 3:29 AM No comments:
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Thursday, October 18, 2012

I’m offering an open heart, I’m asking for your hand

Being asked to marry the person I love so dearly that shares my day-to-day life & struggles. (I said yes! :D)

Posted by Unknown at 2:42 AM No comments:
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Wednesday, October 17, 2012

Well, that was underwhelming

Making it through the 3 hours it took for my -10- minute doctor appointment, getting told "don't get your hopes up," then cleaning out the car.

Posted by Unknown at 5:21 AM No comments:
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Tuesday, October 16, 2012

You want HOW many pages of medical history?

Completing all the new patient paperwork for my appt with the new doc.

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Monday, October 15, 2012

It’s a different kind of warm

Enjoying the warm autumn breeze through the window before the temps drop.

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Sunday, October 14, 2012

I don’t care what anyone else thinks…

Catching up on new Glee.

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Saturday, October 13, 2012

If I leave my grin behind, remind me…

Getting my "Cheshire Kitten" t-shirt in the mail. :) "We're all mad here... and it's okay!"

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Friday, October 12, 2012

National Coming Out Day

Coming out as asexual on my Facebook, where family who didn't know may see it.

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Thursday, October 11, 2012

Once a nurse, always a nurse

Despite not being in direct patient care any longer, I still got angry when the actions of others jeopardized my patient's safety.

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Wednesday, October 10, 2012

Personal and professional research

Finding that my personal research and my project research for work dovetailed nicely, killing 2 birds with 1 stone.

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Tuesday, October 9, 2012

Doctors – collect the whole set!

Not losing my head completely upon getting a new diagnosis, and with it, a new doctor.

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Sunday, October 7, 2012

Those little signs of cooling weather

Pulling out my big, fluffy, comfy green sweater for the mid-40s temperatures.

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Sisters and tea time on a Saturday

Tea time with the younger sister - getting to hear all about her days at college and giving "big sister" advice.

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Saturday, October 6, 2012

Special projects

Getting approval to do a special project at work - one that is MY idea.

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Friday, October 5, 2012

Happy 50th, RJ!

Getting to wish someone I love a happy 50th - from the opposite side of the country!

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Thursday, October 4, 2012

Options, if you know where to look

Helping a friend potentially find more options than he knew he had for his future.

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Wednesday, October 3, 2012

A touch of levity

Coworkers who can add levity to an otherwise abyssmal first day back to work.

Posted by Unknown at 1:21 AM No comments:
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Tuesday, October 2, 2012

Comfy blanket pile

A pile of warm, comfy blankets to entice lovers and cats alike to snuggle on a chill evening.

Posted by Unknown at 1:11 AM No comments:
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Monday, October 1, 2012

Wheel of Time, book 7 – Crown of Swords

Hours spent curled up with a good book.

Posted by Unknown at 3:25 AM No comments:
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      • That was FAR more exciting than I hoped for
      • Hydroplaning all the way home
      • Ah yes, multiple storm systems moving into the area
      • A coloring book the length of my arm
      • Doctors, doubling as tech support
      • What next
      • It will not be easy, but it will work
      • And we have approval
      • I still have a job
      • Chilling out
      • Conversation and song
      • Enough ‘beta viewers’ approved that I sent it to t...
      • Techie stuff (even if I couldn’t fix it)
      • I’m offering an open heart, I’m asking for your hand
      • Well, that was underwhelming
      • You want HOW many pages of medical history?
      • It’s a different kind of warm
      • I don’t care what anyone else thinks…
      • If I leave my grin behind, remind me…
      • National Coming Out Day
      • Once a nurse, always a nurse
      • Personal and professional research
      • Doctors – collect the whole set!
      • Those little signs of cooling weather
      • Sisters and tea time on a Saturday
      • Special projects
      • Happy 50th, RJ!
      • Options, if you know where to look
      • A touch of levity
      • Comfy blanket pile
      • Wheel of Time, book 7 – Crown of Swords
    • ►  September (30)
    • ►  August (30)
    • ►  July (32)
    • ►  June (23)

Relevant blogs - places you might find related topics

  • A Southern Celiac
  • Benefits Scrounging Scum
  • ButYouDon'tLookSick.com
  • Deb's Fibromyalgia Blog
  • Ehlers-Danlos Syndrome - Deal With It
  • FIBROMYALGIA
  • Guidance, Healing, and Love by Sydney
  • Life and Fibromyalgia
  • Little Miss Dinky's E.D.S. Diary
  • Sally Rouge
  • The Bloggess
  • The Tensile Times
  • The Zebra Diary

The Usual Suspects - some of my standard reading list

  • A Day in the (Fat) Life
  • Bardic Blog
  • From Rebecca's Window
  • Kottke.org
  • Leah Raeder
  • Life on the Fat Farm
  • Live.Like.A.Rockstar
  • Noël Lynne Figart
  • Whatever
  • WilWheaton.net
  • Zen Habits

Time for a break - comics I read regularly

  • Ctrl+Alt+Del
  • Dork Tower
  • El Goonish Shive
  • Gods Playing Poker
  • Joy of Tech
  • Misfile
  • VG Cats
  • XKCD
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