Grateful Little Victories

When every day is a struggle with illness, you learn to be grateful for the little victories.

Monday, December 31, 2012

Nothing earth-shattering

Having the difficult, but necessary, conversations.

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Saturday, December 29, 2012

Especially Wheel of Time fandom

Feeling a PART of an online community in a way I haven't since my IRC (and later, FFXI) days. [heart you Tumblr]

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Okay, so the planning was secondary

Ventured out of the house, into the snow, and did preliminary wedding planning.

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Wheel of Time fanfic

Wrote a bit of fanfiction for the first time in 14 years.

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Thursday, December 27, 2012

I'll take it, it's something

I laughed spontaneously for the first time in days.

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Tuesday, December 25, 2012

When the majority of my cards are about sleep?

Eventually managed another 3-4 hours sleep, after being awakened by the phone 2 hours after going to bed.

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Monday, December 24, 2012

Haven't done a single one otherwise

Managed at least 1 holiday tradition (odd as it is) and made cajun 15 bean soup.

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I started with 9 1/2 hours of sleep

I finally slept. When I woke, I wanted moe sleep. So I slept another 4 hours. Woke, then slept another 2 1/2. THEN I got  up.

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Sunday, December 23, 2012

Insomnia at least leads me to do household stuff

Getting several household things accomplished, even if my 1 stated goal wasn't.

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Saturday, December 22, 2012

Actually made 2 pans by accident

Made an at least passable attempt at lasagna for the first time ever.

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Thursday, December 20, 2012

My victory for the day is writing out my victory

Focusing long enough to write/post this card.

Posted by Unknown at 11:49 PM No comments:
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Wednesday, December 19, 2012

This is more writing that you'd think

Finished the 10 page disability self-assessment that has been on my desk for a week.

Posted by Unknown at 8:02 PM No comments:
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I can hold a pen today

Still needing my utensil adaptor to eat, but being able to hold a glass with 1 hand and grasp a pen for a time.

Posted by Unknown at 4:29 AM No comments:
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Wedding trip backlog, 12/17/12 - But it's only been 5 hours. Oh fine, be that way.

Acknowledging that I am in a full-blown flare and when, after just 5 hours, my body demanded I go back to bed, I listened.

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Wedding trip backlog, 12/16/12 - HI BED

Going to sleep in MY bed.

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Wedding trip backlog, 12/15/12 - I even had an official title

Live-streaming my nephew's wedding for distant family/friends.

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Wedding trip backlog, 12/14/12 - I'm sure the car helped

Making a 9 hour drive and still having the energy to socialize with family after arriving.

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Thursday, December 13, 2012

I am in sore need of it

Doing all necessary prep for trip early so I can get a good night's rest.

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Wednesday, December 12, 2012

Too much to do, too little time

Preparing all the things for the next trip to Chicago (this weekend!).

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Tuesday, December 11, 2012

Broccoli, Brussel's Sprouts, and breakfast sausage

I emptied the dishwasher, reloaded the dishwasher, and made myself the strangest fried rice ever.

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Monday, December 10, 2012

I am a PMS monster

Realizing that PMS is making everything worse, and choosing to be gentle with myself because of it.

Posted by Unknown at 11:58 PM No comments:
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Sunday, December 9, 2012

Granted I can't play much on the laptop

Giving myself permission to work (and play) from my bed.

Posted by Unknown at 11:22 PM No comments:
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Okay, maybe I didn't "make" him do it

Staying awake WAY too late to make the fiance start book 9 of Wheel of Time. (Must. Have. More...)

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Saturday, December 8, 2012

Braving cold and rain and fog

Grocery shopping at 10 at night to completely stock the freezer.

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Thursday, December 6, 2012

Anime old school

Curling up in bed with a pile of old Sailor Moon episodes. (Across the top, the symbols for the Inner Senshi in their colors, along the bottom, "Supreme Thunder" in green.)

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Wednesday, December 5, 2012

There are just some times...

Giving myself a little manicure/pedicure. (White base, red and green sparkles.)

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Tuesday, December 4, 2012

Something is better than nothing

I got up AND I managed a shower, however sketchy, without falling down.

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Monday, December 3, 2012

Alarm was set for 5pm

It took 2 1/2 hours, but I got out of bed.

Posted by Unknown at 11:51 PM No comments:
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Sunday, December 2, 2012

Oh hey, a Ustream app

Working out a way to broadcast my nephew's wedding for those who can't attend, if he agrees to let me.

Posted by Unknown at 11:42 PM No comments:
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Saturday, December 1, 2012

She hates me now, of course

Took steps to help my cat keep from licking her wound constantly (it involves a bright pink doggie vest.)

Posted by Unknown at 11:52 PM No comments:
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Friday, November 30, 2012

All right, you bastards

A Civ V "smackdown" with 3 of my favorite friends to swear at.

Posted by Unknown at 11:35 PM No comments:
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Thursday, November 29, 2012

What's this? Energy?!

For the first time in weeks, I have the energy to be PRODUCTIVE!

Posted by Unknown at 11:41 PM No comments:
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Wednesday, November 28, 2012

Groggy when we called him

Finding out that my future father-in-law had a successful surgery and will be fine.

Posted by Unknown at 11:27 PM No comments:
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Tuesday, November 27, 2012

We can wait until I'm abnormal again

Going into my hematology appointment and learning my IgG levels are still high enough that I can skip this IVIG treatment.

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Monday, November 26, 2012

Marathon gaming session

Waking at a (relatively) reasonable hour despite the RIDICULOUS hour I went to sleep.  (Damn you, Civilization V on sale from Steam!)

Posted by Unknown at 11:55 PM No comments:
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Sunday, November 25, 2012

Warm & fuzzy snuggles

Falling asleep & waking up, comforted and snuggled by two fuzzy, purring kitties and one warm, snuggly human.

Posted by Unknown at 11:54 PM No comments:
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It was a cold, snowy drive

Making it through a total of ~7 hours of driving (solo) to see family and attend a musically-themed baby shower for my cousin.

Posted by Unknown at 4:36 AM No comments:
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Friday, November 23, 2012

Nightmares you can't escape from suck

Despite needing to be woken from a nightmare, I got up and made potatoes and eggs for breakfast.

Posted by Unknown at 11:58 PM No comments:
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Thursday, November 22, 2012

Hunting for a formal, pretty, dark green gown

Here we go...  Beginning the terrifying process of wedding planning - do you know how HARD it is to find formal, ATTRACTIVE, plus size gowns in green?

Posted by Unknown at 11:53 PM No comments:
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Day before Thanksgiving shopping

Going shopping for scarves, nail polish, and ingredients for an awesome-smelling chicken curry (in the crock pot, à la Noël).

Posted by Unknown at 6:40 AM No comments:
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Tuesday, November 20, 2012

Governmental hoop-jumping

Filling out the appropriate Official Paperwork to apply for supplemental health coverage with my Medicare.

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Non-healing wound = vet time

Taking a (surprisingly chill) cat to an early morning vet appointment.

Posted by Unknown at 2:38 AM No comments:
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Monday, November 19, 2012

International Survivors of Suicide Day – November 19th

I helped spread awareness of International Survivors of Suicide Day - November 19th. (Red colored heart and the name Amy)

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Saturday, November 17, 2012

Finding your tribe

Watching an inspired and inspiring TED talk by the incredible Heather Dale.

Posted by Unknown at 11:34 PM No comments:
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Friday, November 16, 2012

Faith in humanity: restored

Seeing at least 3 things online that helped restore some faith in humanity.

Posted by Unknown at 11:42 PM No comments:
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Thursday, November 15, 2012

Bananas or Brasso, take your pick

Successfully saved a badly scratched CD with a BANANA PEEL of all things!

Posted by Unknown at 11:43 PM No comments:
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Wednesday, November 14, 2012

Hall of mirrors

Beginning to mirror all my GLV posts to my newly-created Tumblr account.

Posted by Unknown at 11:28 PM No comments:
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Well, I did promise

Doing nothing more strenuous or productive than watching a marathon of Newsroom.

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Tuesday, November 13, 2012

Not a bad drive at all

Both making excellent time on the drive home AND not being completely worthless at the end.

Posted by Unknown at 2:01 AM No comments:
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Windycon backlog, 11/11/12 – An extra night in My City

Deciding not to drive home, but stay an extra night with my sister.

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      • Nothing earth-shattering
      • Especially Wheel of Time fandom
      • Okay, so the planning was secondary
      • Wheel of Time fanfic
      • I'll take it, it's something
      • When the majority of my cards are about sleep?
      • Haven't done a single one otherwise
      • I started with 9 1/2 hours of sleep
      • Insomnia at least leads me to do household stuff
      • Actually made 2 pans by accident
      • My victory for the day is writing out my victory
      • This is more writing that you'd think
      • I can hold a pen today
      • Wedding trip backlog, 12/17/12 - But it's only bee...
      • Wedding trip backlog, 12/16/12 - HI BED
      • Wedding trip backlog, 12/15/12 - I even had an off...
      • Wedding trip backlog, 12/14/12 - I'm sure the car ...
      • I am in sore need of it
      • Too much to do, too little time
      • Broccoli, Brussel's Sprouts, and breakfast sausage
      • I am a PMS monster
      • Granted I can't play much on the laptop
      • Okay, maybe I didn't "make" him do it
      • Braving cold and rain and fog
      • Anime old school
      • There are just some times...
      • Something is better than nothing
      • Alarm was set for 5pm
      • Oh hey, a Ustream app
      • She hates me now, of course
    • ►  November (31)
      • All right, you bastards
      • What's this? Energy?!
      • Groggy when we called him
      • We can wait until I'm abnormal again
      • Marathon gaming session
      • Warm & fuzzy snuggles
      • It was a cold, snowy drive
      • Nightmares you can't escape from suck
      • Hunting for a formal, pretty, dark green gown
      • Day before Thanksgiving shopping
      • Governmental hoop-jumping
      • Non-healing wound = vet time
      • International Survivors of Suicide Day – November ...
      • Finding your tribe
      • Faith in humanity: restored
      • Bananas or Brasso, take your pick
      • Hall of mirrors
      • Well, I did promise
      • Not a bad drive at all
      • Windycon backlog, 11/11/12 – An extra night in My ...
    • ►  October (31)
    • ►  September (30)
    • ►  August (30)
    • ►  July (32)
    • ►  June (23)

Relevant blogs - places you might find related topics

  • A Southern Celiac
  • Benefits Scrounging Scum
  • ButYouDon'tLookSick.com
  • Deb's Fibromyalgia Blog
  • Ehlers-Danlos Syndrome - Deal With It
  • FIBROMYALGIA
  • Guidance, Healing, and Love by Sydney
  • Life and Fibromyalgia
  • Little Miss Dinky's E.D.S. Diary
  • Sally Rouge
  • The Bloggess
  • The Tensile Times
  • The Zebra Diary

The Usual Suspects - some of my standard reading list

  • A Day in the (Fat) Life
  • Bardic Blog
  • From Rebecca's Window
  • Kottke.org
  • Leah Raeder
  • Life on the Fat Farm
  • Live.Like.A.Rockstar
  • Noël Lynne Figart
  • Whatever
  • WilWheaton.net
  • Zen Habits

Time for a break - comics I read regularly

  • Ctrl+Alt+Del
  • Dork Tower
  • El Goonish Shive
  • Gods Playing Poker
  • Joy of Tech
  • Misfile
  • VG Cats
  • XKCD
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